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publication library – Palliative Care Initiative (PCI

publication library

Our library contains publications created by members of our SON-PCI, indexed by type, to keep you up-to-date with the latest research in palliative care at Johns Hopkins.  

  • Petchler, C. M., Singer-Cohen, R., Fisher, M. C., DeGroot, L., Gamper, M. J., Nelson, K. E., Peeler, A., Koirala, B., Morrison, M., Abshire Saylor, M., Sloan, D., & Wright, R. (2024). Palliative Care Research and Clinical Practice Priorities in the United States as Identified by an Interdisciplinary Modified Delphi Approach. Journal of Palliative Medicine, 27(9), 1135–1145. 10.1089/jpm.2023.0664
  • Nelson, K. E., Wright, R., Fisher, M., Koirala, B., Roberts, B., Sloan, D. H., Wu, D. S., & Davidson, P. M. (2021). A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs. Journal of Palliative Medicine, 24(2), 177–180. 10.1089/jpm.2020.0435  
  • Koirala, B., Davidson, P.M., Ferrell, B. & Dennison Himmelfarb, C. (2020). Rationale and resources for accelerating palliative care competencies in critical care settings. AACN Advanced Critical Care. 31(2). 191-195. 10.4037/aacnacc2020281
  • Lim, A., Benjasirisan, C., Tebay, J., Liu, X., Badawi, S., Dennison Himmelfarb, C., Davidson, P.M. & Koirala, B. (2025). Gender differences in disease burden, symptom burden, and quality of life among people living with heart failure and multimorbidity: Cross-sectional study. Journal of Advanced Nursing. doi: 10.1111/jan.16797
  • Williams, M. T., Kozachik, S. L., Karlekar, M., & Wright, R. (2020). Advance Care Planning in Chronically Ill Persons Diagnosed With Heart Failure or Chronic Obstructive Pulmonary Disease: An Integrative Review. The American journal of hospice & palliative care, 37(11), 950–956. 10.1177/1049909120909518
  • Lim, A., Benjasirisan, C., Tebay, J., Liu, X., Badawi, S., Dennison Himmelfarb, C., Davidson, P.M. & Koirala, B. (2025). Gender differences in disease burden, symptom burden, and quality of life among people living with heart failure and multimorbidity: Cross-sectional study. Journal of Advanced Nursing. 10.1111/jan.16797
  • Wright, R., Chapla, K., Ahluwalia, A. K., Booth, A., Choi, E., Koh Krienke, L. S., Nelson, K. E., Ojukwu, E., Roberts, B., Sloan, D., Swain, C., Taylor, J. L., & Wu, D. S. (2025). Using Experience-Based Co-Design With Resident-Physicians and Black Community Members to Enhance Goals-of-Care Conversation Skills Training: Findings and Methodological Modifications. The American journal of hospice & palliative care, 10499091251338842. Advance online publication. 10.1177/10499091251338842 
  • Peeler, A., Nelson, K., Agrawalla, V., Badawi, S., Moore, R., Li, D., Street, L., Hager, D.N., Dennison Himmelfarb., C., Davidson, P.M. & Koirala, B. (2024). Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States. Journal of Advanced Nursing. 10.1111/jan.15998
  • Petchler, C. M., Singer-Cohen, R., Fisher, M. C., DeGroot, L., Gamper, M. J., Nelson, K. E., Peeler, A., Koirala, B., Morrison, M., Abshire Saylor, M., Sloan, D., & Wright, R. (2024). Palliative Care Research and Clinical Practice Priorities in the United States as Identified by an Interdisciplinary Modified Delphi Approach. Journal of palliative medicine, 27(9), 1135–1145. 10.1089/jpm.2023.0664 
  • Nelson, K. E., Adams, K., Kahn-John, M., Davidson, P. M., Ferrell, B., Meah, M., Petchler, C., Ricker, A., Runsabove, K., Werk, A., Wright, R., & Brockie, T. N. (2024). ‘In our culture, we come when you die’: Qualitative descriptive analysis of end-of-life perspectives in a reservation-based community. Journal of Advanced Nursing, 10.1111/jan.16324. Advance online publication. 10.1111/jan.16324
  • Nelson, K. E., Runsabove, K., Saylor, M. A., Adams, K., Davidson, P. M., Perrin, N., Werk, A., Wright, R., & Brockie, T. N. (2024). Predictors of Supportive Care Needs During Serious Illness: Cross-sectional Analysis of Reservation-Based Informal Caregivers. Journal of hospice and palliative nursing: JHPN: the official Journal of the Hospice and Palliative Nurses Association, 26(5), 273–281. 10.1097/NJH.0000000000001050
  • Koirala, B., Davidson, P.M., D’Aoust, R., Silbert-Flagg, J., Slater, T., Ling, C., Busch, D., Rushton, C.H., Razzak, R., Ferrell, B. & Dennison Himmelfarb, C. (2023). Accelerating advanced practice palliative care competencies: An educational research initiative. Journal of Nursing Education and Practice, 13(11), 31-38. 10.5430/jnep.v13n11p31
  • Regier, N. G., Cotter, V. T., Hansen, B. R., Taylor, J. L., & Wright, R. J. (2021). Place of Death for Persons With and Without Cognitive Impairment in the United States. Journal of the American Geriatrics Society, 69(4), 924–931. 10.1111/jgs.16979 
  • Wright, R.,Lowton, K., Hansen, B. R., & Grocott, P. (2020). Older adult and family caregiver preferences for emergency department based-palliative care: An experience-based co-design study. International journal of nursing studies advances, 3, 100016. 10.1016/j.ijnsa.2020.100016
  • Nelson, K. E., Wright, R., Abshire, M., & Davidson, P. M. (2018). All Things Death and Dying: Health Professional Students Participating in the Death Café Model. Journal of Palliative Medicine, 21(6), 850–852. 10.1089/jpm.2017.0440  
  • Wright, R. J., Lowton, K., Robert, G., Grudzen, C. R., & Grocott, P. (2018). Emergency department staff priorities for improving palliative care provision for older people: A qualitative study. Palliative medicine, 32(2), 417–425. 10.1177/0269216317705789 
  • Wright nèe Blackwell, R., Lowton, K., Robert, G., Grudzen, C., & Grocott, P. (2017). Using experience-based Co-design with older patients, their families and staff to improve palliative care experiences in the Emergency Department: A reflective critique on the process and outcomes. International Journal of Nursing Studies, 68, 83-94. 10.1016/j.ijnurstu.2017.01.002 
  • Koirala, B., Benjasirisan, C., Lim, A., Moore, R., Dennison Himmelfarb, C. & Davidson, P.M. (2025). Experienced-Based Co-Design in Cardiovascular and Chronic Disease Research. European Journal of Cardiovascular Nursing, 24(4), 652-658. 10.1093/eurjcn/zvae129
  • Petchler, C. M., Singer-Cohen, R., Fisher, M. C., DeGroot, L., Gamper, M. J., Nelson, K. E., Peeler, A., Koirala, B., Morrison, M., Abshire Saylor, M., Sloan, D., & Wright, R. (2024). Palliative Care Research and Clinical Practice Priorities in the United States as Identified by an Interdisciplinary Modified Delphi Approach. Journal of Palliative Medicine, 27(9), 1135–1145. 10.1089/jpm.2023.0664
  • Wright, R., Chapla, K., Booth, A., Nelson, K. E., Peeler, A., Swain, C., Won, S., & Wu, D. S. (2024). Enhancing Rigor, Quality, and Patient Engagement in Qualitative Research: A Step-By-Step Guide to Applying Reflexive Thematic Analysis to the Experience-Based Co-Design Methodology. Qualitative Health Research, 0(0), 10497323241291798. 10.1177/10497323241291798 
  • Koirala B., Badawi, S., Frost, S., Ferguson, C., Hager, D.N., Street, L., Perrin, N., Dennison, Himmelfarb, C. & Davidson, P.M. (2023). Study Protocol for Care cO-ORDInatioN And sympTom managEment (COORDINATE) Program: A Feasibility Study. BMJ Open, 13(12), e072846. 10.1136/bmjopen-2023-072846
  • Koirala, B., Davidson, P.M., Ferrell, B., Silbert-Flagg, J., Slater, T., D’Aoust, R., Ling, C., Busch, D., Rushton, C., Razzak, R., & Dennison Himmelfarb, C. (2023). A framework for integrating advanced practice palliative care competencies in nursing education. Journal of Nursing Education and Practice, 13(9),32-37. 10.5430/jnep.v13n9p32
  • Nelson, K. E., Wright, R., Abshire, M., & Davidson, P. M. (2018). All Things Death and Dying: Health Professional Students Participating in the Death Café Model. Journal of Palliative Medicine, 21(6), 850–852. 10.1089/jpm.2017.0440  
  • Wright nèe Blackwell, R., Lowton, K., Robert, G., Grudzen, C., & Grocott, P. (2017). Using experience-based Co-design with older patients, their families, and staff to improve palliative care experiences in the Emergency Department: A reflective critique on the process and outcomes. International Journal of Nursing Studies, 68, 83-94. doi: 10.1016/j.ijnurstu.2017.01.002 
  • Won, S., Cotter, V. T., Kim, C., Kruahong, S., Wright, R. J., Britt, K. C., & Regier, N. G. (2025). Exploring intersectionality in spiritual experiences of older adults and their unpaid caregivers: An integrative review. Geriatric Nursing, 65, 103500. 10.1016/j.gerinurse.2025.103500 
  • Witham, G., Regier, N., Abshire Saylor, M., Allgood, S., Curriero, S., Gray, T.F., Gunes, E., Hansen, B.R., Levy, R., Nelson, K., Petchler, C.M., Singer Cohen, R., Wright, R. (2024). A scoping review of global patterns in reporting race, ethnicity, nationality or religion in palliative care randomised controlled trials: Recommendations for transparency. Palliative Medicine 2692163241291352. Advance online publication. 10.1177/02692163241291352     
  • Wright, R., Regier, N. G., Booth, A., Cotter, V. T., Hansen, B., Taylor, J. L., Won, S., & Witham, G. (2023). Considerations of Intersectionality for Older Adults with Palliative Care Needs in the Emergency Department: An Integrative Review. Current Geriatrics Reports. 10.1007/s13670-023-00399-z
  • Asano R., Anderson, K.M., Koirala, B., Abshire, M., Dennison Himmelfarb, C. & Davidson, P.M. (2022). Use of Edmonton Symptom Assessment Scale in heart failure: A systematic review. The Journal of Cardiovascular Nursing, 37(4), 341-349. doi: 10.1097/JCN.0000000000000835
  • Nelson, K. E., Wright, R., Peeler, A., Brockie, T., & Davidson, P. M. (2021). Sociodemographic Disparities in Access to Hospice and Palliative Care: An Integrative Review. The American journal of hospice & palliative care, 38(11), 1378–1390. 10.1177/1049909120985419 
  • DeGroot, L., Koirala, B., Pavlovic, N., Nelson, K., Allen, J., Davidson, P.M. & Abshire, M. (2020). Outpatient palliative care in heart failure: An integrative review. Journal of Palliative Medicine. 23(9), 1257-1269. 10.1089/jpm.2020.0031
  • Williams, M. T., Kozachik, S. L., Karlekar, M., & Wright, R. (2020). Advance Care Planning in Chronically Ill Persons Diagnosed With Heart Failure or Chronic Obstructive Pulmonary Disease: An Integrative Review. The American journal of hospice & palliative care, 37(11), 950–956. 10.1177/1049909120909518