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Managing multiple chronic conditions, studying social determinants of health, and providing community-driven care are the pillars of the PROMOTE research center at the Johns Hopkins School of Nursing (JHSON). Funded through a National Institutes of Health P30 grant, the center is advancing the science by supporting patients with multiple chronic conditions and providing an opportunity for researchers to drive culture change and develop sustainable health care initiatives through innovative research design.

The Center (Promoting Resilience in Persons with Multiple Chronic Conditions) is founded on leading a unique shift in the current paradigm of disease-specific models of care to person-centered, community-focused methods that address various factors affecting health including functional limitations, family caregivers’ perspectives, poverty, housing, access to food, or traumatic life events.

Center Director
Sarah L. Szanton, PhD, ANP, FAAN,
Professor, Director, Center for Innovative Care in Aging

Staff Members
Jennifer Smith, BA, Senior Administrative Coordinator
Sokha Koeuth, MPH, Project Administrator

Executive Committee from Johns Hopkins School of Nursing

Publications

 

  • External Advisory Committee (EAC)

    Cynthia Boyd, MD, MPH, Chair
    Johns Hopkins School of Medicine and School of Public Health; Center on Aging in Health, Center for
    Area of Expertise: Transformative Geriatric Research, multiple chronic conditions, particularly patient centered care and treatment burden.

    Kurt Stange, MD, PhD, Co-chair
    Case Western Reserve University School of Medicine, past President North American Primary Care Research Group
    Area of Expertise: multiple chronic conditions and implementation science

    Susan Dorsey, PhD, RN, FAAN
    University of Maryland School of Nursing, Department of Pain and Translational Symptom Science
    Area of Expertise: physiology of pain and co-morbid conditions

    Roland Thorpe, PhD
    Johns Hopkins School of Medicine and School of Public Health; Center on Aging in Health
    Area of Expertise: health disparities research, particularly place based context on health, and discrimination

    Jeremy Walston, MD
    Johns Hopkins School of Medicine and School of Nursing; Center on Aging in Health; Older Americans Independence
    Area of Expertise: clinical geriatrics, frailty and physiologic resilience in the context of multiple chronic conditions

    Jennifer Wolff, PhD
    Johns Hopkins School of Medicine and School of Public Health; Center on Aging in Health
    Area of Expertise: integrating family caregivers into treatment, decision making and communication amongst people with multiple chronic conditions.

  • Translation Advisory Committee

    Ahrin Mishnan
    Executive Director of Foundation
    Rita and Alex Hillman Foundation

    Helen Montag
    Senior Director of Business Development and Corporate Partnerships
    Johns Hopkins Technology Transfer          

    Ahnand Parekh, MD
    Medical Director
    Bipartisan Policy Center     

    Karen Bandeen-Roche, PhD
    Johns Hopkins School of Public Health and School of Nursing; Center on Aging in Health; Older Americans Independence
    Area of Expertise: applying biostatistics to multiple biological systems

    Elise Singer, MD, MBA   
    CareLinx   
    Medical Director at CareLinx

    Dan Soliman
    Director of Housing Impact Area
    AARP Foundation

  • Pilot Projects

    PI: Martha Abshire, PhD, RN

    Project title: CAREGIVER-SUPPORT Caregiver Support in the Context of Multiple Chronic Conditions
    Relevance to PROMOTE Center: will promote resilience by addressing caregiving needs in a vulnerable, older adult population of carers for people with advanced heart failure and other chronic conditions.

    Description of the Pilot

    • Target population: caregivers of older adult with advanced heart failure and other co-morbidities.
    • Problem addressed: understanding dynamic and contextual factors of family caregiving including
      • resources,
      • needs and
      • social support
    • Purpose:   improve quality of life in family caregivers of patients with multiple chronic conditions.
    • Phases: 1) a mixed methods study to understand caregiver burden, fatigue, social support and quality of life

    2) a pilot intervention, developed using co-design that will focus on caregiver purpose in life, goal-setting to reduce caregiver burden and walking meetings to address strategies to achieve goals.

    • Intervention:   a resilience-building intervention delivered in the home developed suing co-design, which will incorporate end users as key stakeholders in the design, development, execution and evaluation
    • Risk: Both phases are low risk for participants. 
    • Future work: R level funding
       

    PI: Kelly Gleason, RN, PhD

    Project title: The Impact of Chronic Conditions on Patient-Reported Diagnostic Error
    Relevance to PROMOTE Center: Will promote understanding of the barriers individuals with chronic conditions face in receiving an accurate diagnosis

    Description of the Pilot
     
    • Target population: Emergency department patients with chronic conditions.
    • Problem addressed:  Diagnostic errors, an urgent public health issue, are largely unmeasured and unmonitored. How chronic conditions impact diagnostic process is poorly understood.
    • Purpose:  Develop and implement a patient-centered measure of diagnostic error, Leverage Patient’s Experience to improve Diagnosis (LEAPED).
    • Phases:
      1) Deploy and determine patient uptake of LEAPED
      2) Explore how chronic conditions, pain, and fatigue impact the diagnostic process through qualitative interviews.
    • Intervention: Seek patient feedback on their understood diagnoses and health status following emergency department discharge through the electronic health record (EHR)-facing patient portal.
    • Risk: Both phases are low risk for participants. 
    • Future work: K level funding

     

    PI: Junxin Li, PhD, RN

    Project title: A Personalized Behavioral Intervention for Older Adults with Musculoskeletal Pain and Sleep Complaints
    Relevance to PROMOTE Center: Will optimize wellness and achieve active and healthy lives of community-dwelling older adults with chronic musculoskeletal pain and sleep complaints.

    Description of the Pilot

    • Target population: community-dwelling older adults with chronic musculoskeletal pain and sleep complaints
    • Problem addressed:  older adults’ pain, sleep and mood 
    • Purpose: To promote physical and psychological wellness of community-dwelling older adults with chronic musculoskeletal pain and sleep complaints.
    • Intervention:  a personalized behavioral intervention includes individually tailored exercise training, circadian based activity guidelines with real time self-monitoring, interactive prompts, phone consultation, and financial incentives.  The intervention delivery is facilitated by multiple mobile health technology.
    • Phase: Pilot test the feasibility and preliminary efficacy of the proposed intervention for pain, sleep, and mood in 20 older adults with chronic pain and sleep complaints.
    • Risk: Low risk for participants.
    • Future work: R level funding


    PI: Nada Lukkahatai, PhD, MSN, RN

    Project title: Assessment of a Tailored Home-Based Exercise Program on Symptoms, Well-Being, and Resilience Among Cancer Survivors with Multiple Chronic Conditions
    Relevance to PROMOTE Center: will promote resilience by using Tailored Home-Based Exercise Program in Cancer Survivors with Multiple Chronic Conditions.

    Description of the Pilot

    • Target population: Cancer survivors other co-morbidities.
    • Problem addressed: The feasibility of the Tailored Home-Based Exercise program on
      • resilience
      • well-being
      • symptoms
    • Purpose:   improve quality of life in cancer survivor with multiple chronic conditions.
    • Phases: 1) Intervention trial phase (open-label phase) to understand the cancer survivors’ perception and acceptability of the Tailored Home-Based Exercise Program. The program is designed to tailored the type of exercise based on the purpose in life and goal setting.

    2) a pilot testing of the intervention phase to examine the effectiveness of the program on Symptoms (e.g., pain fatigue), well-being and resilience.

    • Intervention:   a Tailored Home-Based Exercise Program, which will incorporate end users as key stakeholders in the design, development, execution and evaluation
    • Risk: Both phases are low risk for participants. 
    • Future work: R level funding
  • Events

    November 27, 2018

    Centering Resilient Communities, Families, & Individuals: Seeking a Decolonized Approach to Health Care and Health Research presentation by Emily A. Haozous, PhD, RN, FAAN

    November 15, 2018

    The Center for Cardiovascular and Chronic Care presents the US-Australia Chronic, Aged, and Palliative Care Symposium

    Sponsored by: NSP II- Accelerating advanced practice palliative care competencies and expanding practice partnerships and the Johns Hopkins School of Nursing Center to Promote Resilience in Persons and Families Living with Multiple Chronic Conditions (the PROMOTE Center)

    Agenda