Why is the ADS Plus Study Being Conducted?
The purpose of the study is to evaluate whether we can:
- Augment adult day services with systematic caregiver support
- Provide education and build skills for caregivers as part of routine ADS care
- Improve strategies for better caregiving among family caregivers of adult day service clients
- Enhance wellbeing of both the person with dementia and the family caregiver
The study seeks to answer these questions:
- Can augmenting adult day services with the ADS Plus improve caregiver well-being and reduce depressive symptoms?
- What are the benefits of the ADS Plus program at 3, 6 and 12 months to family caregivers compared to usual adult day services?
- What are the costs of the ADS Plus program?
- Does the ADS Plus program also improve client outcomes?
Learn More about this ADS Plus Study
What Is the ADS Plus Program?
- The ADS Plus Program is an evidence-based supportive program for family caregivers of persons living with dementia who are enrolled in an adult day service. The ADS Plus program consists of 5 key components:
- Education about dementia
- Emotional support
- Strategies for taking care of self
- Skills to manage daily care challenges
- Staff members of adult day services who are trained in the program work one-on-one with a family caregiver over a 12-month period. The staff member and caregiver identify "care challenges," and an "ADS Plus Prescription" is provided, which is a written document detailing easy-to-use strategies to address the caregiver's care challenges. On-going education and support and specific strategies for reducing stress and taking care of self as a caregiver are provided.
Why Is the ADS Plus Program Needed?
- Today, over 15 million family caregivers in the United States provide care to older adults with Alzheimer's Disease and Related Disorders. Most caregivers assume care responsibilities without training or support and may experience multiple health risks themselves including depression. One such solution is augmenting existing adult day services with systematic support of family caregivers such as ADS Plus.
- The number of adult day services is growing and provide a critical community resource to families. ADS Plus extends ADS services from being person-centered to being able to be family-centered.
How is the ADS Plus Study Being Conducted?
- 30 adult day services across the United States have volunteered to participate in the ADS Plus Study:
- 15 of these sites have been randomly assigned (by a flip of a coin) to serve as the control group in which routine ADS care is provided
- The other 15 sites have been randomly assigned to deliver the ADS Plus Program
- A total of 300 family caregivers who are caring for a person with dementia and attending one of the 30 sites will be enrolled in the study (150 family caregivers in 15 ADS Plus Program sites; 150 in 15 Control Sites).
- This will involve 10 to 15 caregivers per participating site
About the Study
- FOR SITES PROVIDING ADS USUAL CARE
- Family members in adult day services assigned to provide usual care are interviewed 4 times over 12 months by a member of the Johns Hopkins research team (see timeline below)
- The purpose of these interviews is to evaluate the health and well being of families using adult day services
- FOR SITES PROVIDING ADS and ADS PLUS
- Families members in adult day services assigned to provide usual care and the ADS Plus Program are interviewed 4 times over 12 months by a member of the Johns Hopkins research team (see timeline below).